Category Archives: Uncategorized

Honesty

I posted this site yesterday; i’m really glad I did.  I had over 200 views yesterday and and almost 100 today.  People are interested; people can be kind.

Appearances to the contrary, I am not normally one to put myself out there when I feel vulnerable.  I come off as strong and self assured when I feel like I can control a situation, in some way.  But when I have no control or when I feel absolutely vulnerable — like I feel now when my body is failing me — I tend to close myself off.  I don’t take calls or go out, I don’t respond to e-mails, I don’t make plans and I certainly don’t reach out for help.  I know this about myself.  It is how I tick, how I have always operated.  Unfortunately, what it means is that instead of simply feeling alone, by virtue of my actions I am alone.

I don’t want to be alone.

This blog has many facets.  It is a tool for learning, a tool for understanding.  For me, it is my little way of staying connected with the world and with the people who kindly want to stay connected with me.  I can’t promise that when I am hurting, when my body aches and sings with pain, that I will be able to pick-up the phone or accept a visitor.  But that does not mean I want to be left alone.

I am asking you, dear reader, to stay by my side through this.  To read these pages as a way to check in on me and to follow my little journey.  I do not ask for your prayers, but only a tiny space in your hearts and a moment in your mind to let me know I am not forgotten.  For your kindness I promise that I will push beyond myself and try to write, about my experiences, how I feel and how I am.

Although I know I could do this myself, this time I just don’t want to.  I want you to come along for the ride.

Preparing for Surgery

I am 15 days, a little more than two weeks, away from my RPAO and I realized that I need to make sure that I have started to get everything together that I am going to need, day of and once I get home.  It’s crazy all the things you have to think of when you realize that you are going to be out of commission for a while:

1. Order my Durable Medical Equipment (shower chair, raised toilet seat, rental wheelchair) for delivery to my house when I am in the hospital — Check!

2. Order sundry medical aids for use at home after the surgery (pick-up grabber, foam cushion, sock put-on aide) — Check!

3. Take a look at my Suggested Pre-Op Purchases (which can be viewed under the drop-down titled “R U A HIpster?”) to see what I need to shop for in the next two weeks. — Check-ish (this is gonna take a while but it appears I have most of the stuff I need)

4. Line up people to take care of walking my dog / feeding my cat while I am in the hospital (and once I get home) – Check!

5. Make sure all Christmas gifts are purchased in plenty of time!  This is a tough one because I am a terrible gift picker outer and now, I have less time to think about it. Ugh.

I think this is a good start.  Once I started to write it all out it began to feel a little overwhelming, so I gave up for the night.  The one good thing about the surgery is that it will be over and then there’s nothing I can do about it.  I can’t make my hip become unbroken — it will be broken and I have to figure out a way to deal with it.  Whatever I didn’t do will get done.  Whatever plans I have will work themselves out.  I truly believe that this will all come together in the end, and it will be fine, whether or not I plan it to an inch of its life.

Is it weird that I think that having a surgery that will break me into bits is having the effect of putting me together into a calmer, more reasoned person?  Yep, think it is.

Vacationing

We’re still here in Miami, enjoying the sun, eating extremely well and relaxing like we were born to it.  We have another day here; it seems so strange to go back to New York, and to my life and responsibilities. My surgery is 19 days away, a little less than 3 weeks. My first pre-op appointment is 9 days, my second 10. I figured I’d be freaking out by now.  Instead, I’m not really concerned at all. If anything, I’m feeling introspective.

I have never had a broken bone.  In 19 days I will have three.  I have had stitches on my knee and where the portals were for my arthroscopic surgery but none of those scars are more than 3/4″ long.  Each of my hip upcoming hip surgeries will require an incision between 8″-10″ long. The scars will run down my legs, be visible when I wear a swimsuit and possibly above the waistband of my pants. after the surgery and healing, I will have more bone in my body than I did before the surgery. I will be disabled for weeks or months, will stay in the hospital days probably 5 days. I will be, in some ways, transformed from this surgery. Yes, for the good because hopefully it means that I will be back to being able to function.  But I will be transformed, fundamentally, and I can’t seem to wrap my head around that.

I am waiting to freak out, again, but for now I’m just vacationing inside my head.

Calm

Today I am calm.  Maybe it’s the fact that I turned in my assignment for my Con Law class or that I am almost done with my classes this semester but for whatever reason, I feel strangely calm today.  I have to admit that it’s nice.

My first PAO surgery is 27 days away, less than 4 weeks, less than 1 month.  Before the surgery I have lots to do and I’m actually looking forward to getting it all done.  I have to finish my classes, finish my law review assignment, go to Miami for Thanksgiving (yea!!!), order my equipment, have two pre-operative appointments, work, and emotionally prepare myself.

My plan is to work through the day before the surgery. If I don’t work and I just sit at home I am sure I will freak out.

However, for today, I am calm. Ahhhhhhhhh…….

Starting to Panic

(NOTE — this is from 11/12/12)  I’m not sure if it’s the surgery of the fact that I haven’t really eaten anything today aside from coffee but I am totally starting to panic.  I thought that if I wrote it down in this blog it would start to feel better, less like I am freaking out.  Not so much.

31 days.  In 31 days I could grow a rabbit.  Or a skunk.  If, I guess, I were a female rabit or skunk.   But you get my drift.  31 days is the countdown and I am FREAKING out.

Oh, and as if to top it off, I think I caused a hairline fracture in my front tooth.  So I will be gimpy and basically look like a hillbilly if they have to remove the tooth.  I really really really hope they don’t.

One small step for multimedia

Dysplastic Hip

I like to think of this as “my right hip”

I thought it would be useful to actually put some pictures into this blog (which, like my law school books, is very text heavy).  So here is a drawing of how hip dysplasia works.  For me, this is probably how my right hip looks where the acetabulum is too shallow and not enough of the femoral head is covered.  My left hip has retroversion — the acetabulum covers enough of the femur but it is tipped forward.  On my right hip, they are going to tip the acetabulum further outward whereas on the left, they will tip the acetabulum toward the back, I think.  I have to be honest, I can’t quite figure it out myself (that’s probably not such a big deal as long as I’m not doing the surgery).

This is a great link to how the PAO surgery is going to go: PAO Animation.  I found it very useful.

Shopping, and a little fear

I am 36 days away from the first PAO and I decided to take the plunge and make my first purchase of durable medical equipment.  Yes, I promise, this was as uninteresting as it sounds. 

Following the surgery I need a lot of ‘aids’ to help me around the house and, you know, to move and live and stuff.  These aids include (but are not limited to): a shower seat, a gripper (to pick things up from the floor), a raised toilet seat, a wheelchair or walker and crutches.  I will get my compression stockings (hot!) while in the hospital and will wear them for 3 weeks following surgery.

I have decided to start with a wheelchair after the procedure.  I figure it will be my safest bet in case it is slippery after the surgery.  I really don’t want a situation where I have to walk a long distance or accidentally fall after the surgery.  I may change my mind after I have it and switch it out for a walker.  I am 35 years old and may need to use a walker.  This is so screwed up!

As to the crutches, I have decided to go with the Millenial Crutches.  They are supposed to be better for long-term usage and since I will have to use them at a minimum for 6 weeks after each surgery, and likely longer, I had better find something that I like and am comfortable with.

I don’t know what it is.  Maybe it’s the cold, or the fact that it’s November, but I think I am starting to get a little worried.  I feel like it is something that is or should be happening to someone else, but certainly not to me.  And yet it is.  It just feels weird and sorta creepy.  I really want this all to be behind me.  Partly I just want someone to understand how hard I fear this is going to be.  What if it is TERRIBLE and then, 4 months later, i get to do it again?  What if I can’t get back to my life for so long that things get screwed up.  I am starting to play the ‘what if’ game and it’s rough.  I know I shouldn’t but I can’t stop it. 

I’ve never had a broken bone — I don’t understand.

Some Tech Specs

I thought today would be a good day to describe exactly what the hell this PAO thing is and what is going to happen. This is more of a “here is the info for anyone reading this blog” post than a “here is what I am feeling” post.

Here are a few links that describe “what is developmental dysplasia in an adult hip:”

http://www.hipdysplasia.org/adult-hip-dysplasia/

http://en.wikipedia.org/wiki/Hip_dysplasia_(human)

I thought this general info would be useful because when I first heard of dysplasia, my only points of reference were to either babies or big dogs. And in truth, that’s where most instances of dysplasia appear. Humans normally only have to deal with dysplasia as babies because it’s normally caught at birth.  On the other side, large dogs like German Shepherds and the like start to have problems with dysplasia as they age.  But in either event, it sort-of the same idea.

This is an (animated) video of the procedure (a Periacetabular Osteotomy or PAO) which is available on my Doctor’s website and which I found tremendously helpful when I was trying to figure out what exactly is going to happen on surgery day. It’s kinda great because it shows you how the surgery works without being super graphic or creepy (which, let’s all be honest, this is going to be SUPER graphic and INCREDIBLY creepy):

http://www.hss.edu/animation-PAO-periacetabular-osteotomy.htm

I also really like the drawings on this link which show what the hip looks like before and after the surgery (again, as a drawing, not gross or gory):

http://aussiepaohipjournal.blogspot.com/2011/02/found-this-website-which-might-be.html

I thought about posting a link to a video of a real PAO but it is hard enough for me to look at and I figured most people would be grossed out. However, I can tell you that it’s possible to find if you go to YouTube.

What none of this shows is how your hip looks after the surgery with all the screws (yes, I will have a ton of screws in me after this procedure to keep the newly positioned acetabulum in place while the bone heals).

I am definitely having a PAO on my right side (the December surgery). Depending on how it goes, I will have either a PAO or an Open Hip Debridement on the left (the April surgery).

I figure I’ll wait to get into the details of hospitals stays, recovery times, physical therapy and all that other bullshit until a later date – this post is super fact intensive and I’m getting bored writing it which leads me to believe anyone else would be bored reading it.  But I do hope it’s helpful!