Tag Archives: Wheelchair

Access-an-Adventure!

The six weeks following surgery when you are prohibited from putting basically any weight on your operated leg presents a special set of circumstances. On the one hand, you are tired and recovering and need a lot of sleep and are happy to hang out at home. On the other hand, you have basically been in the house for six weeks straight (in my case, almost four weeks to date) and you are starting to go stir crazy. As a result, I decided to venture beyond my apartment door a few times in the last couple of days to see, what the kids these days call, the outside.

Yesterday I went for my disability evaluation with the MTA Access-a-Ride paratransit program (http://www.mta.info/nyct/paratran/guide.htm). Basically, its an on-demand alternative to standard public transportation which, if I am deemed eligible, I could use to get to my appointments and even to work since wheelchair accessible public transit is not really an option where I live.

The evaluation required that I use an Access-a-Ride bus to visit the evaluation center.20130108-184503.jpg20130108-184531.jpg

In the wheelchair and used the lift to get into the bus.  Once onboard, I was SHOCKED (see shocked face) by how many cables and belts they used to make sure I did not roll around.

20130108-184511.jpgMy friend Dave helped push me around in the wheelchair.  I am really bad with the wheelchair, like bad enough that the nice lady at the evaluation center suggested I take lessons.  I get stuck in corners, a lot.  I always think of that scene in Austin Powers where he tries to do a three point turn and gets stuck in the hallway.  At least I can laugh — otherwise it would be tragic.

I’ll hear within 21 days whether I’m eligible for service. Fingers crossed!

My husband and I realized that it had been a long time since we’d taken our dog to the park to run around so on Saturday we bundled up like crazy and Guy wheeled all the way to Fort Greene Park so that Boris could play with his buddies.

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After all of that activity, it was nice to have a visit from my husband’s Aunt Margaret and cousin Elaine.

20130108-184632.jpgThey were so kind and brought pastries, bagels and a cake.  We relaxed for a while — it has been so nice to have visitors.  Since my energy is still FAR lower than it used to be and since my mobility is basically non-existent, I have appreciated that people have been willing to stop by.

 

Next big adventure?  I am weening myself off of Tramadol and onto only Tylenol and Aleve.  Oh, my life is full…

Recovery Lacks Pizzaz

It has been exactly one month since my PAO. I continue to gain strength in my operated leg.  Unfortunately, my not-yet-operated leg is deteriorating under the stress of bearing all of my weight.  I’m more tired than I thought I would be at this point and sleep around 10 hours a night. I seldom have any significant pain in my right hip joint. However, the muscles in my right thigh and around my right knee often ache, either from the surgery, the atrophy, or the fact that they are all stretched out because of the placement of the bone. I wake up every night because of the ache. My house is filled with equipment — multiple sets of crutches, a wheelchair, a walker, the list goes on. It’s more than three weeks until my next follow-up, more than three weeks until any of this changes. I live in pajamas, I have noticeable roots and I really need a haircut.

Now don’t get me wrong — I knew what I had signed up for. Recovery is a slow process and I need to let my body heal. But like so many things, knowing how things will be is a lot different than experiencing it. And now I know, and it has become ABUNDANTLY clear, that recovering from surgery is really freaking hard for me.

This may sound insane but surgery was exciting!  Pre-op appointments, learning where the cuts would be made, talking to the surgeon, blood draws, getting my bag packed, waking up early to make it to the hospital on time, checking in, getting myIV, being wheeled into the operating room?!? These adventures were WAY cool! And then I woke up and there are people everywhere and alarms going off and I realized I was stuck to 4 cables and, oh by the way, the surgery just happenend and possible complications and then there’s the days in the hospital and visitors and therapy and going home and being on drugs and follow-up appointments.  Novel! Excitement!!

Then, slowly, the excitement faded and there’s not much new and novel going on.  Life is getting back to normal, although slower and less shiny than before the surgery because, well, I’m recovering.  I’m back to work (from home, for which I am really thankful thankful since it permits me to have some interaction with the outside world, plus, it exercises my brain). I leave the apartment a few times a week with my husband but doing something as simple as going to dinner wears me out. I watch tv or draw. I am TOTALLY ready for my tax appointment. And I’m starting to research what my next surgery will be like, because even if it’s another PAO, it will be new and novel and a little bit exciting.

I know who I am, that I thrive when I am busy, that the busier I am the more I can get done and the happier I feel.  I grasp on to exciting new things, always looking for something I can do next.  Recovery has forced me to slow down, a lot, to stay in the moment and to let my body heal. There is no glitz, no glitter or sequins. Nothing new to target my sites on, nothing special, just more of the same but less… It is me, slowly getting better, without the shine or sparkle, the new or the novel. In this way, for me, recovery is way harder than the surgery was.

Merry Vegan Christmas

It was a pretty mellow Christmas here in Brooklyn. My mom made a really fantastic vegan dinner complete with mashed potatoes, cranberry sauce, vegan gravy, brussels sprouts and a surprisingly tasty Field Roast Hazelnut Cranberry roll.

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Lots of protein (extremely important for healing) and lots of grapes and pears for dessert. Here is a photo of my mom joyfully displaying the feast (note the cotton candy pink tree in the background) as well as a photo of my plate (and elevated toes and walker as a backdrop).

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We took another trip in the wheelchair and I am really shocked by how un-wheelchair friendly my building and the local streets are. I am going to write some strongly worded letters, that’s for sure. Aside from the obstacles I am starting to get a tiny bit better with the chair but it is physically exhausting!

Only other bit of news is that I lowered my med dosages again to 3x/day (from 4x/day) and am off all narcotics. I have my first follow-up with my surgeon on the 28th. This first appointment is really just so he can see how I’m doing and how my scar is healing. I won’t have an X-ray of the bone until my 6-week check-up, sometime in late January. That will be a defining appointment where my surgeon will tell me whether my pelvis has grown back together or if there are any complications.

And with that, Merry Christmas and on to Boxing Day!

Christmas Eve Adventure

I left the apartment building today for the first time since I came home from hospital on the 17th. Since I’m still sort of, kind of, pretty weak and easily worn out, we decided to take the wheelchair for a spin instead of using my walker or either set of crutches. I’ve been scaling back my pain meds and I’m taking them down even more tomorrow but there’s no way I have enough stamina to get to the sidewalk much less 10 blocks round-trip. However, I’ve been sleeping a lot, about 12 hours a night, and taking a spin in the chair sounded like a lot of fun.

I thought I might be able to wheel myself but it became immediately apparent that I would need substantial amount of help from my mom to get around. Here’s a photo of us having just left the apartment building and in the courtyard.

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Our trek took us down to a local bakery called Choice. A few things to know when first using a wheelchair: 1) you’re going to need help; 2) it is practically impossible to get over any sort of crack, no matter how small it is, without someone pushing you [as an aside, I love that my phone tried to AutoCorrect “of crack” to “Crackville”]; 3) figure out how to configure the settings in your wheelchair before you leave the house; and 4) have a positive attitude because it’s going to be absurdly ridiculous the first time you try.

In any event it was really nice to get out of the house and to feel a little less confined.

We’re hoping to take another jaunt outside sometime tomorrow, even if it’s just to go around the neighborhood and look at the decorations. This is definitely going to be one of the least traditional Christmases I’ve ever had but the house is warm and lit with Christmas lights and I know that I’ll enjoy hanging out with my mom and watching endless episodes of NCIS.

Wishing everyone the merriest of Christmases!!